Getting used to my new life took time, but with the amazing people in my life we took one day at time.
Our ballet class was doing a 'Snow White and the Seven Dwarfs' production, I was supposed to be sneezy, but I now had to be replaced. I really didn't like the poor girl who took 'my' part, my sister didn't like her either. Thankfully no-one else disliked her because of me and I think she was happy and unaware of our issues, I do remember watching the production and feeling seriously left out. My life became just that, watching a lot of activities and feeling very left out. It's a good thing that I love talking so much, that became my new pastime, oh yes and watch TV.
What a miraculous invention, I could escape and become someone else. My struggles and frustrations can fade for awhile. I know it's not green these days, but I still love TV so much.
Another thing we did a lot, was seeing Dr's and specialists, long drives even longer waits in dr's rooms. The MRI scan had just come out so naturally we had to do that too, we were certain it held all the answers. Did it? Naa! Everything was normal, except for the fact that I could hardly move! So we kept seeing the various doctors who gave us no answers , just "hey, well done you're improving!" I remember asking my neurologist when I could join the netball team again, I was getting ticked at watching my position being badly played!
He laughed and said "you know you're never gonna walk again!" The thing is I didn't know, no adult had ever mentioned to me that this would be permanent. What the adults took for granted was not what I a 10 yr old took for granted! I was crushed, I cried and cried. My mother took me aside looked me in the eyes and said, "Tania he doesn't even know what happened to you, you've improved so much without his help or advice. Don't listen to him, he doesn't know what he's talking about!" That made sense to me.
We continued with physio and within months I could, once helped in to a standing position..stand, on my own, without anyone touching me. Only for a few seconds at first, but that was all needed to stay encouraged. What struck me the most was the view from a standing position, life looks different from up there!
The moment arrived! One morning while my mother was dressing me, I was standing taking in the view, I felt it the urge to take a step. It burned in my legs, I asked my mom if I could try, she very nervously said okay.
My left leg moved forward with ease and planted on the ground, I had just taken my very first step, for the second time in my life. I wasn't done though, I pulled my right leg forward, shame she struggled a bit. My right leg is very much weaker than the left, so she dragged forward pulling me off balance and I came crashing down in to my mother's arms. It didn't matter, I had taken two steps, which meant I could walk.
My parents bought me a walker, we put wheels on the front so I could push it like a trolley. The next time we went to see my neurologist I walked in with my walker, he recognized me instantly. The waiting room became ciaos as the Dr was running up and down with his secretary clicking her pen nervously behind him. She came past us and offered an explanation, "he's trying hurry so he can see you, he's just so excited!" He really was. When you're trying to prove someone wrong, and they get excited that you proved them wrong, well that's just the bomb!
Our ballet class was doing a 'Snow White and the Seven Dwarfs' production, I was supposed to be sneezy, but I now had to be replaced. I really didn't like the poor girl who took 'my' part, my sister didn't like her either. Thankfully no-one else disliked her because of me and I think she was happy and unaware of our issues, I do remember watching the production and feeling seriously left out. My life became just that, watching a lot of activities and feeling very left out. It's a good thing that I love talking so much, that became my new pastime, oh yes and watch TV.
What a miraculous invention, I could escape and become someone else. My struggles and frustrations can fade for awhile. I know it's not green these days, but I still love TV so much.
Another thing we did a lot, was seeing Dr's and specialists, long drives even longer waits in dr's rooms. The MRI scan had just come out so naturally we had to do that too, we were certain it held all the answers. Did it? Naa! Everything was normal, except for the fact that I could hardly move! So we kept seeing the various doctors who gave us no answers , just "hey, well done you're improving!" I remember asking my neurologist when I could join the netball team again, I was getting ticked at watching my position being badly played!
He laughed and said "you know you're never gonna walk again!" The thing is I didn't know, no adult had ever mentioned to me that this would be permanent. What the adults took for granted was not what I a 10 yr old took for granted! I was crushed, I cried and cried. My mother took me aside looked me in the eyes and said, "Tania he doesn't even know what happened to you, you've improved so much without his help or advice. Don't listen to him, he doesn't know what he's talking about!" That made sense to me.
We continued with physio and within months I could, once helped in to a standing position..stand, on my own, without anyone touching me. Only for a few seconds at first, but that was all needed to stay encouraged. What struck me the most was the view from a standing position, life looks different from up there!
The moment arrived! One morning while my mother was dressing me, I was standing taking in the view, I felt it the urge to take a step. It burned in my legs, I asked my mom if I could try, she very nervously said okay.
My left leg moved forward with ease and planted on the ground, I had just taken my very first step, for the second time in my life. I wasn't done though, I pulled my right leg forward, shame she struggled a bit. My right leg is very much weaker than the left, so she dragged forward pulling me off balance and I came crashing down in to my mother's arms. It didn't matter, I had taken two steps, which meant I could walk.
My parents bought me a walker, we put wheels on the front so I could push it like a trolley. The next time we went to see my neurologist I walked in with my walker, he recognized me instantly. The waiting room became ciaos as the Dr was running up and down with his secretary clicking her pen nervously behind him. She came past us and offered an explanation, "he's trying hurry so he can see you, he's just so excited!" He really was. When you're trying to prove someone wrong, and they get excited that you proved them wrong, well that's just the bomb!
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